My Struggles With Epilepsy

It wasn’t something that came on gradually, it was something that I had ever since I was born, or maybe even when I was still in the womb. I had to put up with constant bullying because they thought it would be funny to pick on the girl that stared off into space, (Like Luna Lovegood from ‘Harry Potter). I listened to the song, ‘How To Save a Life’ a lot of times during those years, and sometimes, when you find the right music to listen to, it can lighten up your entire day, or even a week.

I used to have them every six weeks, (not even medication could fix what I have) and sometimes even grand mals. (The type people stereotype people having when they think of seizures). Until last year. Something happened, and I started having Non-Epileptic fits 25 and sometimes even to 45 times a day. I was going from doctor to doctor, doing blood draws, and countless EEG’s, Cat Scans, & MRI’s. They hurt, to be blunt. A month ago I finally found a great doctor and the seizures have been reduced to 2 or 3 seizures a day. (And grand mals every month or two around the same time). During the time period that I was having these seizures, I didn’t let them stop me. I would let my brain glitch, and then go back to whatever I was doing, no matter how tired I had become. My work paid off, and now my book, ‘Just the Way It Is’ is soon to be released into the black pit that is known as London. (Just kidding, I was channeling my inner Sweeney Todd). My seizures didn’t stop my life, in fact, they made it even better. I will always have seizures, but they don’t have me.

39 thoughts on “My Struggles With Epilepsy

  1. Hi Megan. Just noticed you followed my blog. Thank you for that. I’m interested in what attracted you to it.

    The main reason I am commenting though, is the coincidence. My wife happens to be the Regional Director for the Hampton Roads Chapter of the Epilepsy Foundation of Virginia. Our area takes in Virginia Beach, Norfolk, Hampton, Newport News, Williamsburg and Chesapeake here in southeastern Virginia. She (sometimes we) travels around giving talks to acquaint people with epilepsy and give them an awareness of the various types of seizures that can occur. The whole idea is to make the public more aware that it is NOT a mental illness. She likes to give examples of people such as yourself who do not let epilepsy define their lives or stop them from accomplishing great things….just as you are doing. She also hosts support groups where epilepsy heroes like you can share their life experiences.

    Are you in England? I look forward to more of your posts and again, thank you for following my blog.

    • Oh, I wish I was in England! I live in Seattle Washington… If you wanted to share my experiences with your group, that would be fine. And what attracted me to your blog, is that fellow writers have to stick together! ❀

      • Wow I sure got that wrong….but very similar climates! We loved visiting Seattle just a few years ago.

        I’m going to give you the link to the Facebook page that my wife keeps up for the Foundation. Feel free to contact her, I think she would love to share some of your varied accomplishments with her groups as a way of encouragement to all.

        Here is her email if you are ever interested in contacting her directly (efva.hr@gmail.com). The Facebook page she keeps up is Epilepsy Foundation of Virginia Hampton Roads. Realizing, of course, that you probably get your fill of this type of thing, it would be wonderful if you could communicate with her someday. You will find her a loving, caring, and very intuitive person….the epilepsy heroes around here just love her! Me too!

      • Great. She just finished reading your pages on your blog to get to know you. Also, (and I promise to leave you alone now) my FB page (Victor A. Hood) will show you some pictures of her and our family.

        Have a great evening!!

  2. How strange that you would follow my blog on a day that I have had to go back on my epilepsy medication. I have TLE, not as severe as yours but I’ve had two seizures today and it’s not pleasant. I’m glad you found me, and if you ever want to talk, well I know your pain.

  3. I think it sounds like you are handling your epilepsy as best as you possible can! I am 35 with Grand Mal Types Seizures. I had my first seizure at 13. My parents always treated it as a part of me, but not the whole part, so I was always open and honest with everyone, even when some people weren’t sure I should be. Because of my parents attitude, it never occurred to me that it should be a secret and I always thought it was better for people around me to know, so that when I inevitably had a seizure it wouldn’t be a total shock. I am currently on Keppra and it controls my seizures now. Epilepsy can be hard and having to adjust your whole life around not driving, or avoiding strobe lights, eating properly and getting enough sleep (my three biggest triggers), but you can (and sounds like you do!) have a great life! I am a married, stay at home mom and my husband takes my epilepsy in stride and helps me to avoid my triggers. I look forward to getting to know you more and will absolutely read your book when it comes out! Sorry for the novel length comment!

    • It’s totally okay! It made me smile. My biggest triggers are, ‘Caffeine, not enough sleep, and stress’. And YAY! I have to admit, I’m very impatient once it comes to my book… also, feel free to add me on Facebook if you want!

  4. Hi Megan,

    You visited my blog and left a straight point question which l answered by mail to science…Thanks for leading me to your blog. I am following henceforth and can’t wait to buy your book. Please let me the release and all. Cheers, Marie author of My Unconventional love

  5. Hi Megan, since you followed my blog I thought I’d see what you were about, and found this stuff about epilepsy, so just wanted to express a bit of solidarity. I had a grand mal fit when I was fourteen. It was out of the blue with no apparent family history, and the EEG showed nothing unusual… at which point my grandmother confessed that her mother and sister both had it quite badly, secretly, and they all kept quiet because of some persisting stigma – you probably know the Victorians associated it with excessive masturbation so it was a thing of shame.
    At least we’re past that idiocy. I had a few more petit mal fits over the next fifteen years, but then it stopped and I’ve had no trouble since, so compared to your condition I guess it’s pretty lightweight, but I can at least say I know how it feels. My older brother on the other hand started having fits about fifteen years ago and has had some fairly bad ones… alcohol aggravated it so he’s pretty well stopped drinking. For the most part he seems to live a fairly normal life.
    Anyway it sounds like you’ve managed to turn it into something constructive, so more power to your elbow!

  6. Your story and your attitude are inspiring! Kids can be cruel and that potentially can make the teased person just give up – glad you didn’t πŸ™‚

    Thanks so much for visiting/following my blog. Glad to have “met” you here!

  7. I’m so glad to find someone like me who’s struggling a lot but still pursues her dream (but I think you struggled a lot more than me). We’re not yet sure if I have mild epilepsy ’cause I haven’t gone to my doctor. But sometimes I still do get seizures when I work too much.

    Anyway so glad to find you! Looking forward to your future posts!

  8. “I will always have seizures, but they don’t have me”. That’s a great sentence, and a great post. Thanks for sharing and good luck with your book πŸ™‚

  9. you are so brave! writing this blog! i have dispraxia which isn’t easy especially since my parents and i only found out a few months ago,and I have been treated wrong my entire life for stuff that isn’t really my fault.

  10. Hi Megan,

    Thanks for following my very new blog! While I’m still learning how a lot of this works, I’ll be reading your stuff and wishing you the best! PS your Harley Quinn looked awesome!

  11. Just another guy who’s impressed with your story, Megan. You ‘followed’ me last night which led me to your site. I’m supposing you found my site on WordPress – mikeandberg.com ? Anyway, I relate to your suffering. You seem with it and, in particular, strong beyond your age – I believe sickness does that to all sufferers. I hope outreach through your blog is a comfort. It’s beneficial to all who read it!

  12. Just read this and I have to say as someone that has epilepsy (mine came on when I was 19), it was nice to read about someone else that I felt was being genuine about their struggle with it and finding the right doctor/treatment plan. I also loved this “My seizures didn’t stop my life, in fact, they made it even better. I will always have seizures, but they don’t have me.”

    Thank you so much!

  13. So glad you followed me today and thanks for the encouragement on my first blog post! I don’t know you very well, but from what I can see/read you’re a strong and genuine person and I wish you best of luck in 2015 πŸ™‚

  14. Thank you for following my blog. I am glad to have found your blog and I am looking forward to reading from a new perspective. I am happy to see that you have found a way to express yourself and make the most of life by opening up to others and sharing your experiences while coming to know those of others. Best wishes for 2015!

  15. You are our poster girl! living and writing with Epilepsy! Blessings! There are many good doctors out there, you should aim for zero seizures, and inshallah it will happen with the right physician and you.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s