One of my online friends died a few days ago because of this, (I just found out) and I thought that this would be a very good topic to talk about on my blog.
SUDEP is defined as an unexpected, fatal death to people who have Epilepsy. It’s still poorly understood; Also, Approximately 50,000 people die each year in the USA from status epilepticus (prolonged seizures), SUDEP, and other seizure-related causes. SUDEP accounts for 8-17% of deaths in people with epilepsy.
When I first heard about SUDEP a year or two ago, I was justifiably afraid for myself and how I didn’t want to leave my family for the big bed upstairs. As soon as I saw my neurologist at the next appointment, I asked him, “What are my chances of getting SUDEP?”
He thought for a moment.
“Little to none,”. But that really didn’t reassure me, as SUDEP is unexpected and fatal like I wrote above. Plus it doesn’t help the fact that I usually have grand mals in my sleep. I just try not to think about it that often, but I had to come out of my comfort zone and show you guys what other things that people REALLY don’t talk about once it comes to Epilepsy.
Here’s a link if you want more information: http://en.wikipedia.org/wiki/Sudden_unexpected_death_in_epilepsy